The MOST important thing this week is that my BABY BOY is going to be 5 years old on FRIDAY! Where has the time gone?!?!
Since school has been out, we have been out and about! Trying to make the most of our Summer with the kiddos and enjoy time outdoors! :D Logan has been really well behaved! He loves to explore new things! Here is what we have done so far:
*A TinCaps Game -- He loved it, but it got rained out not even half way through the game!
*Emily's baseball games -- He doesn't really pay too much attention to the game. He prefers to take snacks and a different tote of toys each time we go! In his defense...it has been HOT.
*Waterpark -- It's not really a "waterpark" but more a splash park! He loves going to hang out there.
*Pool -- We haven't been too often, but he is definitely a waterbug!
*Visited the Sunken Gardens in Huntington -- Him and his sister got to feed the fish, play at the park, and explore all of the different types of plants that grow there. Daddy caught two GIANT crawdads (not sure if that is how you spell it, but they looked like mini-lobsters!).
*Hiked some difficult trails -- This was on Father's Day. I think it was the first time Logan has ever really gone hiking. As we were wayyyy back in the woods almost to the end of one trail and getting ready to turn on another -- a HUGE tree fell right over the trail where we were not even a minute earlier! It was LOUD and rumbled the ground. We all ducked! Logan FREAKED...and he was DONE. The rest of the way he was panting and trying to get out of those woods as quickly as his little feet could carry him. (It was a little scary!)
*Biked the trails -- We have been doing this pretty frequently. We live very close to the river greenway. We hop on the trails and bike by the golf course. Logan is SLOWLY building up strenghth and going a little further each time. I think with his asthma, this is REALLY difficult for him! He does A LOT of crying and whining. His therapist says it is good for him to ride a mile or two.
*Buckner Park -- We met up with my sis, her husband, and their son Madden. Had a mini picnic, played, and snapped some pics.
*Fort Wayne Children's Zoo -- Thank GOD for Zoo passes! :) This is an all summer long activity in our household. Logan LOVES the zoo and could go every.single.day if we would take him! :D Yesterday, we took my niece, and she loved it!!! :) Logan loved showing her the penguins, birds, and the fountain that you can play in!
We are going to be headed to Evansville in about a week and a half to celebrate my grandmother's 90th birthday! :) While we are there, we are going to take Emily and Logan to Holiday World. My husband and kids have NEVER been! I am excited to show them where we used to visit during the summer! :) I am sure it will be A LOT different to them than Cedar Point! :D
Hope each of you have a great week! <3
Autumn
Follow Logan's Journey: Watch and learn as we live each day coping, learning, and striving to come to terms with "Autism." From genetic testing and developmental delays to lots of love, prayers, and patience...we are learning and experiencing new things every day.
Wednesday, June 22, 2011
Monday, June 13, 2011
Catch-Up
We are trying to get back to our regularly scheduled routine since Emily's episodes. We are slowly getting there, but still waiting on results. I sure cannot wait to find out what the cardiologist and neurologists have to say. I am praying that everything will go okay!
Here are a few updates on Logan:
*He is back on Intuniv and that seems to be the BEST medication for him. I am NOT going to let the pediatrician try anything new. We are at a good place!
*He is doing amazing in speech therapy! His therapist is absolutely blown away by the progress he is making! Not to brag, but he is soooo smart! All of the techniques she is showing him/myself he really takes it to heart and slows himself down. His lisp is almost non-existant. He used to say "ka" for car, and now he will say "carrr" with a big emphasis on the "r." He can say "hungry" like hun-gar-e where the "r" is heard. It used to be "hun-gy." All in all I am impressed with his speech therapist!
*His swimming is over. He got an awesome medal. (I may have mentioned that in the last post?)
*His T-Ball is over and he got THE COOLEST trophy! I will have to get his picture with it. It is neat!
*Physical therapy is going great. He is back to doing aquatic therapy now that lap club is over. He has gained quite a range of motion. I am sure this will keep improving as we get outside with his braces - riding bikes, swimming, walking the trails, etc. :)
*Occupational therapy is fabulous! He is working on body awareness...being able to draw himself while including all parts of himself such as eyes, ears, nose, mouth, 5 fingers, etc. and also putting on his shoes solo. His sensory defensiveness is almost gone. He will let me wash his hair, wipe his own hands when eating, touch different textures...we still have to work on dusting off when he falls down and gets dirty! He doesn't like the dirt all that much. :)
*Yesterday he learned to ride his bike with training wheels. It was kind of funny because he would get going and get confused and slam on his brakes. After about 10 mins and reminding him to pedal in forward circles, he got the hang of it. I took him down to the river greenway this morning and had him ride again (while I jogged for the first time this season). It was fun!
*He is nowlearning complying with picking up his toys! This is HUGE! He has never been one to pick up after himself! I have been working to get to this point for a LONG time. He has bins for all of his toys and they are all sorted by type of toy. Now he will only get out one bin and play with those toys...when he is finished he will pick them up and come and get me to tell me the play room is "nice and shiny!" :D I love it!
Well, that is it for now! I have a feeling my blog posts will probably be once a week now that it is SO NICE outside and the girls are home for the summer! I want to enjoy as much quality time with my girls and Logan as possible!
Here are a few pics I snapped today!
Here are a few updates on Logan:
*He is back on Intuniv and that seems to be the BEST medication for him. I am NOT going to let the pediatrician try anything new. We are at a good place!
*He is doing amazing in speech therapy! His therapist is absolutely blown away by the progress he is making! Not to brag, but he is soooo smart! All of the techniques she is showing him/myself he really takes it to heart and slows himself down. His lisp is almost non-existant. He used to say "ka" for car, and now he will say "carrr" with a big emphasis on the "r." He can say "hungry" like hun-gar-e where the "r" is heard. It used to be "hun-gy." All in all I am impressed with his speech therapist!
*His swimming is over. He got an awesome medal. (I may have mentioned that in the last post?)
*His T-Ball is over and he got THE COOLEST trophy! I will have to get his picture with it. It is neat!
*Physical therapy is going great. He is back to doing aquatic therapy now that lap club is over. He has gained quite a range of motion. I am sure this will keep improving as we get outside with his braces - riding bikes, swimming, walking the trails, etc. :)
*Occupational therapy is fabulous! He is working on body awareness...being able to draw himself while including all parts of himself such as eyes, ears, nose, mouth, 5 fingers, etc. and also putting on his shoes solo. His sensory defensiveness is almost gone. He will let me wash his hair, wipe his own hands when eating, touch different textures...we still have to work on dusting off when he falls down and gets dirty! He doesn't like the dirt all that much. :)
*Yesterday he learned to ride his bike with training wheels. It was kind of funny because he would get going and get confused and slam on his brakes. After about 10 mins and reminding him to pedal in forward circles, he got the hang of it. I took him down to the river greenway this morning and had him ride again (while I jogged for the first time this season). It was fun!
*He is now
Well, that is it for now! I have a feeling my blog posts will probably be once a week now that it is SO NICE outside and the girls are home for the summer! I want to enjoy as much quality time with my girls and Logan as possible!
Here are a few pics I snapped today!
The pose in inevitable...He has 2 sisters! This was his last Lap Club meet!
Logan and his sister Hailey. They were loving eachother at this particular moment! :)
I love this little boy SO much! He had a blast at the park!
Working on his balance... His PT and OT would be SO proud!
It was a little sunny, but I LOVE this picture!
I found a drink that is corn-free! :)
Practicing riding with training wheels! Getting better each time! :)
This is Logan's precious sister Emily that has been through so much these past few weeks! Please say a prayer for her heart and epilepsy! <3
Friday, June 3, 2011
O.M.Goodness...
Ahhhhh! Where to begin?!?! There is a very good explanation as to *why* I haven't updated on Logan in about a week or so...
Last Wednesday I got S.I.C.K (and I never get sick)!!! Full blown strep throat, tonsilitis, and the flu all at the same time. I pretty much was a hermit to my bedroom until Saturday where I still didn't feel 100% but decided to venture out to go visit my parents. As we loaded everyone up in the car Emily, Logan's sister, has a seizure. She seized about 20 seconds, not a super long seizure, but none the less a seizure. She was fully recovered in about 15 minutes (and she does have a history of Epilepsy, although this was her first seizure in 6 years). We kept an eye on her, let her stay the night with my mom and dad bc she was back to 100%, and picked her and Hailey up Sunday to take them to Chuck E Cheese. We normally do not go to Chuck E Cheese, but I felt like a bad mom for ruining the holiday weekend... so we thought it might be nice to "spoil" them a little.
While at Chuck E Cheese's I saw Emily fall to the floor...I went over to check on her and she just said she didn't feel well. I tried to stand her up and she fell down. I took her over to the table and got Logan and Hailey together and ended up taking Emily in to the hospital. It turns out that she had had *another* seizure while at Chuck E Cheese. Poor girl had SOOOOO many things done while in the hospital. She had an EEG, EKG, MRI, CT, spinal tap, and numerous IV's and blood draws. We did find out that she has an arachnoid cyst on her brain, but it hopefully isn't the cause of all of this, and that it shouldn't be an issue. They are going to watch it and see if it grows or changes. She was feeling back to normal (well, still had the headaches and some dizziness) and we brought her home on Wednesday.
Wednesday, once we got her home, she proceded to throw up and be dizzy all through the night and all day yesterday. I put in 2 calls to the neurologist and 2 calls into the pediatrician. Finally someone called me back around 4:30 yesterday and set up an appointment for her this morning at our pediatrician's office. Once there I explained to him everything that has happened and he ordered another EKG and had us bring the results back to him. When we got back with the results he informed us that Emily's heart is only beating 56 beats per minute which is unusually low for her (her normal is 90-110). He told me that he would consult with the neurologist and get back with us.
When I got home the neurologist called to inform me that this was not a side effect of Emily's new anti-seizure medicine...that they thought it is definitely something to do with her heart. So I in turn called Emily's cardiologist @ Riley - Dr. Cordes. Dr. Cordes has now ordered a 24 hour halter monitor and once this is complete he will get the results right away and let us know if he needs to see us, or what-not.
So this is my LONG, crazy, not simple, completely EXHAUSTED explanation for not updating about Logan! : /
He is doing okay - I think he has been completely overwhelmed this past week (haven't we all?!) with all that has gone on. He did finish up "Lap Club" last night...He will sure miss his friends that were all in it with him. It was such a small and close-knit class. I will miss seeing the moms, coaches, and kids! He did get a really awesome medal though! :)
I will keep you all posted as to what is going on... Hopefully it will be less than a week and with better news next time!
Autumn!
Last Wednesday I got S.I.C.K (and I never get sick)!!! Full blown strep throat, tonsilitis, and the flu all at the same time. I pretty much was a hermit to my bedroom until Saturday where I still didn't feel 100% but decided to venture out to go visit my parents. As we loaded everyone up in the car Emily, Logan's sister, has a seizure. She seized about 20 seconds, not a super long seizure, but none the less a seizure. She was fully recovered in about 15 minutes (and she does have a history of Epilepsy, although this was her first seizure in 6 years). We kept an eye on her, let her stay the night with my mom and dad bc she was back to 100%, and picked her and Hailey up Sunday to take them to Chuck E Cheese. We normally do not go to Chuck E Cheese, but I felt like a bad mom for ruining the holiday weekend... so we thought it might be nice to "spoil" them a little.
While at Chuck E Cheese's I saw Emily fall to the floor...I went over to check on her and she just said she didn't feel well. I tried to stand her up and she fell down. I took her over to the table and got Logan and Hailey together and ended up taking Emily in to the hospital. It turns out that she had had *another* seizure while at Chuck E Cheese. Poor girl had SOOOOO many things done while in the hospital. She had an EEG, EKG, MRI, CT, spinal tap, and numerous IV's and blood draws. We did find out that she has an arachnoid cyst on her brain, but it hopefully isn't the cause of all of this, and that it shouldn't be an issue. They are going to watch it and see if it grows or changes. She was feeling back to normal (well, still had the headaches and some dizziness) and we brought her home on Wednesday.
Wednesday, once we got her home, she proceded to throw up and be dizzy all through the night and all day yesterday. I put in 2 calls to the neurologist and 2 calls into the pediatrician. Finally someone called me back around 4:30 yesterday and set up an appointment for her this morning at our pediatrician's office. Once there I explained to him everything that has happened and he ordered another EKG and had us bring the results back to him. When we got back with the results he informed us that Emily's heart is only beating 56 beats per minute which is unusually low for her (her normal is 90-110). He told me that he would consult with the neurologist and get back with us.
When I got home the neurologist called to inform me that this was not a side effect of Emily's new anti-seizure medicine...that they thought it is definitely something to do with her heart. So I in turn called Emily's cardiologist @ Riley - Dr. Cordes. Dr. Cordes has now ordered a 24 hour halter monitor and once this is complete he will get the results right away and let us know if he needs to see us, or what-not.
So this is my LONG, crazy, not simple, completely EXHAUSTED explanation for not updating about Logan! : /
He is doing okay - I think he has been completely overwhelmed this past week (haven't we all?!) with all that has gone on. He did finish up "Lap Club" last night...He will sure miss his friends that were all in it with him. It was such a small and close-knit class. I will miss seeing the moms, coaches, and kids! He did get a really awesome medal though! :)
I will keep you all posted as to what is going on... Hopefully it will be less than a week and with better news next time!
Autumn!
Labels:
corn allergy,
flu,
seizures,
sickness,
strep throat,
stress
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