Today's blog was supposed to be a "catch up" from all of the crazy events that have taken place this Summer and to tell you how awesome this Summer has been with the girls home! Instead, I am using this as a vent, a shoulder to cry on, a journal...
Today when Logan went to therapy I asked Miss Deb to re-evaluate him because he has been literally crying that his arms hurt. Logan is one tough cookie, and I was a little concerned. She checked him out and pulled me aside. She said she thinks it is time for Logan to see a neurologist (which I thought we had, but appearantly we saw a neuropsycologist). After evaluating him today he has lost all of what he had been gaining from PT. She said that his muscle tone in his core and legs have decreased significantly (which for a while we were gaining muscle and it seemed to be going great) and that he has developed a "tremor" in his right leg (which I had noticed, but just thought it was something quirky). She told me that with her experience (she has been doing this over 20 years and is the BEST in Fort Wayne) she believes that this is a muscular disorder. She said he needs to be tested for Muscular Dystrophy. She said that his symtoms: muscle weakness, toe walking, drooling, frequent falling/off balance, difficulty breathing (asthma/apnea - he has both), fatigue, tightening of the heels, and large calves are ALL in the MD category.
If you know me...you know I was all about GOOGLE-ing this when I got home...all I did was read ONE article and I cannot stand to read anything else.
So on to making a neurologist appointment and a check-in with his pediatrician. I am really at a loss for words!
Please pray for my little guy. I love him so much! He is tough and even if this IS what we are dealing with I don't think for one second it is going to slow him down. I guess this also reinforces my decision to keep him home another year and wait on Kindergarten until next year.
Take care!
Tuesday, July 26, 2011
Wednesday, July 6, 2011
Decisions, decisions... Yikes!
So...it's official...our little man is NOT so little anymore. He is now 5 years old! I cannot believe that time has gone so fast. It just amazes me! I just wish I could keep him little forever... So the BIG decision that I have to deal with <<<that I am completely STRUGGLING with>>> Kindergarten for Logan this year OR next?!?!
Therapy has been going excellent for Logan. His therapist's are beyond excited at the progress he is showing! Last week Krista, his occupational therapist, approached me with "He is going to do great in Kindergarten this year!" "WAIT A SECOND... I think you are mistaken Miss Krista... He is only 5 and won't go this year." was my response. Then it hit me and I asked if she thought he was ready. She responded with a big "OH, YEAH. HE IS MORE THAN READY."
So the first thing I did on my way home from therapy was call the girls school and talk to J.C. the head office lady whom we have a great relationship with. I asked her what she thought and she said that with her son she waited a year. She also said that she had never actually witnessed a parent regret starting them a year later, but people who start their child/children a year early often regret it bc the child will fall behind or not be quite mature enough. Hmmm....
If you all really know me...you know that it takes ample time for me to prepare for change. I have been preparing Logan for Kindergarten, only I was preparing for Kindergarten of the 2012-2013 school year, NOT this year.
Yesterday he had another appointment with his PT and OT. I absolutely LOVE both of them. They have by far been a blessing to our family. Miss Deb, his PT, also mentioned Kindergarten yesterday. I wanted a second opinion (not that I didn't trust Krista's opinion, but I just needed to hear someone else's) so I asked Deb what she thought. She also said she definitely thinks Logan is ready. I asked her what she thought about his ADHD and how it will affect him sitting in his seat and attending a full-day kindergarten (bc that is all we have here in FWCS). Her opinion was that if we wait because he just doesn't sit still, he will more than likely be bored if we hold him back a year. She said intellectually he is so, so, so smart and soaks everything up. I agree, he doesn't miss a trick! He remembers EVERYTHING. She recommended calling the school system and having him tested for Kindergarten.
I did call the school and set up an evaluation, however, our school system is soooo backlogged that his eval may not happen until Sept or Oct. I did ask the lady if he were to start school and we realize he isn't ready if it is possible to pull him out and wait...she said that is definitely an option...although I wonder if that is a good option for my son?
SO NOW WHAT?!?!
The "real" me wants to wait and keep him home with me for another year. I absolutely LOVE having him home during the day. It is our special time together... However, will I regret that I didn't at least try it? Will he be bored if I wait? What will the teacher prefer...an immature kindergartener who may listen because he loves to learn or a bored kindergartner that may or may not pay attention??? *sigh*
This is how my mind works...I just want it all to be PERFECT and make the BEST decisions for my little man. What to do....
Any thoughts?!?!
Therapy has been going excellent for Logan. His therapist's are beyond excited at the progress he is showing! Last week Krista, his occupational therapist, approached me with "He is going to do great in Kindergarten this year!" "WAIT A SECOND... I think you are mistaken Miss Krista... He is only 5 and won't go this year." was my response. Then it hit me and I asked if she thought he was ready. She responded with a big "OH, YEAH. HE IS MORE THAN READY."
So the first thing I did on my way home from therapy was call the girls school and talk to J.C. the head office lady whom we have a great relationship with. I asked her what she thought and she said that with her son she waited a year. She also said that she had never actually witnessed a parent regret starting them a year later, but people who start their child/children a year early often regret it bc the child will fall behind or not be quite mature enough. Hmmm....
If you all really know me...you know that it takes ample time for me to prepare for change. I have been preparing Logan for Kindergarten, only I was preparing for Kindergarten of the 2012-2013 school year, NOT this year.
Yesterday he had another appointment with his PT and OT. I absolutely LOVE both of them. They have by far been a blessing to our family. Miss Deb, his PT, also mentioned Kindergarten yesterday. I wanted a second opinion (not that I didn't trust Krista's opinion, but I just needed to hear someone else's) so I asked Deb what she thought. She also said she definitely thinks Logan is ready. I asked her what she thought about his ADHD and how it will affect him sitting in his seat and attending a full-day kindergarten (bc that is all we have here in FWCS). Her opinion was that if we wait because he just doesn't sit still, he will more than likely be bored if we hold him back a year. She said intellectually he is so, so, so smart and soaks everything up. I agree, he doesn't miss a trick! He remembers EVERYTHING. She recommended calling the school system and having him tested for Kindergarten.
I did call the school and set up an evaluation, however, our school system is soooo backlogged that his eval may not happen until Sept or Oct. I did ask the lady if he were to start school and we realize he isn't ready if it is possible to pull him out and wait...she said that is definitely an option...although I wonder if that is a good option for my son?
SO NOW WHAT?!?!
The "real" me wants to wait and keep him home with me for another year. I absolutely LOVE having him home during the day. It is our special time together... However, will I regret that I didn't at least try it? Will he be bored if I wait? What will the teacher prefer...an immature kindergartener who may listen because he loves to learn or a bored kindergartner that may or may not pay attention??? *sigh*
This is how my mind works...I just want it all to be PERFECT and make the BEST decisions for my little man. What to do....
Any thoughts?!?!
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