I know each and every single one of my readers genuinely care for Logan and our family. I really, really do appreciate that and thank each of you for your support!
As you all know I was extremely anxious to send Logan off to Kindergarten - with his history it was just super overwhelming for me. I kept telling everyone "I just don't know how this is going to work." or "There is no way he is going to be able to do this unless something changes." 99% of the time my friends, family, husband, acquaintances, and whomever would respond "Maybe you'll be surprised!" with an optimistic attitude. I honestly wanted nothing more than to be pleasantly surprised, however, that is NOT the case. I know my boy all too well, I know his triggers, I know his struggles, I know pretty much anything and everything he is going to feel before he feels it. I JUST KNOW HIM.
Day 1 (Wed) of Kindergarten: He is in great spirits and excited to go to school. We get there and there are lots of other kids and parents waiting in the hallway for the bell to ring so that we can all walk our babies to their classrooms. He gets extremely anxious in the hallway - starts pulling his hair and grumbling. Asks me not to touch him. I know he has hit his breaking point. As the bell rings and the hallways clear - he calms down - hugs me and has a smile on his face. I drop him off and pray. Later on I pick him up. He is all smiles and said he had a great day! I call his teacher as soon as I can - and she says that she thinks he had a great first day. He had to take a few timeouts for getting up without permission and interupting the teacher while she was talking to other children, but he kept his hands and feet to himself for the most part. We left it that we would e-mail on Thurs and talk over the phone on Fri.
Day 2 (Thurs): As Logan settles into the car I ask him how his day went and he responds with "Well I sat in timeout like 4 or 5 or 6 or maybe 2 times today." Hmmm. Okay... So I e-mail his teacher asking what she observed, if he had a good day/bad day, and how he managed to do in a class with 20+ kids. I didn't hear from her until almost 9 p.m. last night and she ended up calling me. His behavior was night and day from the first day. He was really out of sorts and would shut down when she tried to talk with him. She said he was unable to be still - his hands and feet were going all day. He had no self-control. He was caught poking another child with a fork at the lunch table. He was a wild man on the playground (BUT in his defense there were 55 kids to 2 teachers). On one hand I wanted to break down and cry and on the other hand I was totally okay that they were actually seeing it first hand.
Today is day 3 and he is currently in school. I have tried staying busy but he is all I can think about. Logan is a sweet boy and has a great heart, however, he gets overstimulated sooooo easy. His current diagnosis' are Impulse Control Disorder w/ Agression and ADHD. I shouldn't dwell on the label, but dang it - it isn't right yet - and we haven't found a way to manage his behavior. There is something more to this story... Something that we are missing and I KNOW IT. I am not by any means blaming our doctors or therapists, they are a God send. Amazing people - but he is just a hard case to crack. Today I have been contemplating if I should call up Dr. Walsh (the neurogeneticist) in Indy - he had said that if we were unable to get results that he would further investigate.
What connects developmental delay, right sided motor weakness, drooling, bundle branch block of the heart, a horseshoe kidney, impulse disorder, easily overstimulated, and lack of self control? There has to be something. I am struggling with what direction I need to go. I am his advocate and I have to speak up for his sake...because he can't!
So if you don't mind keeping all of us in your prayers once again I will be forever grateful. Also, if you have ANY suggestions what-so-ever please let me know!!! I am open to any suggestions.
Thanks guys!!!
As you all know I was extremely anxious to send Logan off to Kindergarten - with his history it was just super overwhelming for me. I kept telling everyone "I just don't know how this is going to work." or "There is no way he is going to be able to do this unless something changes." 99% of the time my friends, family, husband, acquaintances, and whomever would respond "Maybe you'll be surprised!" with an optimistic attitude. I honestly wanted nothing more than to be pleasantly surprised, however, that is NOT the case. I know my boy all too well, I know his triggers, I know his struggles, I know pretty much anything and everything he is going to feel before he feels it. I JUST KNOW HIM.
Day 1 (Wed) of Kindergarten: He is in great spirits and excited to go to school. We get there and there are lots of other kids and parents waiting in the hallway for the bell to ring so that we can all walk our babies to their classrooms. He gets extremely anxious in the hallway - starts pulling his hair and grumbling. Asks me not to touch him. I know he has hit his breaking point. As the bell rings and the hallways clear - he calms down - hugs me and has a smile on his face. I drop him off and pray. Later on I pick him up. He is all smiles and said he had a great day! I call his teacher as soon as I can - and she says that she thinks he had a great first day. He had to take a few timeouts for getting up without permission and interupting the teacher while she was talking to other children, but he kept his hands and feet to himself for the most part. We left it that we would e-mail on Thurs and talk over the phone on Fri.
Day 2 (Thurs): As Logan settles into the car I ask him how his day went and he responds with "Well I sat in timeout like 4 or 5 or 6 or maybe 2 times today." Hmmm. Okay... So I e-mail his teacher asking what she observed, if he had a good day/bad day, and how he managed to do in a class with 20+ kids. I didn't hear from her until almost 9 p.m. last night and she ended up calling me. His behavior was night and day from the first day. He was really out of sorts and would shut down when she tried to talk with him. She said he was unable to be still - his hands and feet were going all day. He had no self-control. He was caught poking another child with a fork at the lunch table. He was a wild man on the playground (BUT in his defense there were 55 kids to 2 teachers). On one hand I wanted to break down and cry and on the other hand I was totally okay that they were actually seeing it first hand.
Today is day 3 and he is currently in school. I have tried staying busy but he is all I can think about. Logan is a sweet boy and has a great heart, however, he gets overstimulated sooooo easy. His current diagnosis' are Impulse Control Disorder w/ Agression and ADHD. I shouldn't dwell on the label, but dang it - it isn't right yet - and we haven't found a way to manage his behavior. There is something more to this story... Something that we are missing and I KNOW IT. I am not by any means blaming our doctors or therapists, they are a God send. Amazing people - but he is just a hard case to crack. Today I have been contemplating if I should call up Dr. Walsh (the neurogeneticist) in Indy - he had said that if we were unable to get results that he would further investigate.
What connects developmental delay, right sided motor weakness, drooling, bundle branch block of the heart, a horseshoe kidney, impulse disorder, easily overstimulated, and lack of self control? There has to be something. I am struggling with what direction I need to go. I am his advocate and I have to speak up for his sake...because he can't!
So if you don't mind keeping all of us in your prayers once again I will be forever grateful. Also, if you have ANY suggestions what-so-ever please let me know!!! I am open to any suggestions.
Thanks guys!!!
Man I know those phone calls all too well!! Every time I see the school # on my caller ID my heart always sinks because I don't want to hear what is happening but I know I have to:( Your intuition definitely sounds like it's at a peak which is a good thing, I think that is what drives us moms to keep searching for answers. I personally don't have the answers to L's issues but I've recently been trying to help my own son w/his anxiety and outbursts and found a product that actually "resets" him in a sense. It might be temporary for a little while, but at least it calms him in his most ugly of moments. I'll actually be posting about it as soon as I get caught up with my other daily life stuff:) Maybe it's worth a shot for your son:)
ReplyDeleteHe's a beautiful boy who requires a lot of patience. I'll pray for him and you.
ReplyDelete