Showing posts with label tantrums. Show all posts
Showing posts with label tantrums. Show all posts

Wednesday, October 17, 2012

The Invisible Disability

I have been struggling for a while now about Logan and his school "behavior." I have also been struggling with how his behavior is being addressed at school. I really do like his teacher as a person, however, I don't think she knows my Logan like I do. It has been a real struggle for our entire family.

Basically you have a class of 24 kindergartner's, one teacher, a behavior plan that is followed for all children, and a little boy that isn't your "typical" cookie-cutter child. The behavior plan goes like this: Child starts out on green...if he or she has a great day...he stays on green all day. During the course of the day (6 1/2 hours to be exact) if he or she is asked once or twice or given a friendly reminder called a "Think About It" they move to yellow. If the child does that same behavior or a different behavior that is unacceptable after the yellow - they get moved to red. First things first - I do NOT disagree with this method as a whole. My girls had very similar classroom rules when they were younger and Hailey still does in her 3rd grade class. These types of things work well overall - but Logan is not the "average" child.

Since the second or third week of school Logan has been getting red at least 4 out of 5 days...and here lately...it is 5 out of 5. This consists of a "Think About It" paper that gets sent home and he is supposed to write a sentence about what he did and another sentence on why he will not do this behavior again (mind you - he is in Kindergarten). I did call his teacher and told her that I would not make Logan write these sentences - he doesn't even know how to write all of his letters yet. I did explain to her that we discuss the behavior he gets in trouble for each and every single day and that we discuss ways that we can try to avoid certain situations or why his behavior is disruptive. She agreed that she was okay with the not writing sentences. Thank God. That would have only taken our entire evening and then some...

Here are the latest reasons for his "red" days:  Saying "he is done" with his work, laying on the floor touching the chairs during circle time, touching things on the teachers desk, not sitting still in carline, turning in his papers unfinished, calling his teachers name across the room, speaking out of turn, having trouble keeping his hands to himself, and being "the ONLY child that doesn't stand in line nicely."

I put a call into his teacher and discussed some of these things - I suggested that we needed to come up with short-term goals first before expecting my child (that has Impulse Control Disorder along with ADHD) to sit for an entire day without any of these behaviors showing themselves. I asked her if I provided the stickers and a chart if she could reward him with a sticker after each activity ie: He completes his letter "K" practice sheet, she gives him a sticker...He goes to gym w/out incident, he gets a sticker... He sits quietly and fairly still through circle time, he gets a sticker...etc. She disagreed! She said she thought he is doing this for attention and that would only reinforce the attention seeking behaviors. <<ARE YOU FREAKING KIDDING ME?!?!>> That's what I really wanted to say, but I didn't...I just asked what she thought. She said that she would split his day into morning and afternoons - so if he messes up in the morning he has a chance at green in the afternoon or vice versa. I agreed that she could try it that way...but I have yet to see a single thing. He doesn't get two papers sent home - he gets one - just like before. I also had asked that when he shuts down and refuses to do his work if it would be possible for someone (the couselor, principal, etc.) to take him out of the classroom, talk about why he is upset, give him a short break, and then encourage him to try again. She once again disagreed with me stating "He is so smart - he knows what he is doing. That would just be giving him the break that he wants and I am not willing to do that." Her saying that makes me feel that Logan has control and thinks ahead to what consequence might happen. Logan is not a "planner" thus the IMPULSE CONTROL DISORDER. He is an in the moment child. A here and now child - not a child that stops to think - "Hey, if I don't do my paper, I might get to go for a walk with the pricipal." Or "If I don't do my paper I might lose recess." He doesn't think of those type of things. He just thinks "I don't want to do this right now." That is all his little brain is thinking - he doesn't try to plan ahead in spite of his teacher!

Another issue we discussed was his carline behavior... He was sneaking to sit with his sister and then she was trying to help "control" him and that doesn't work well AT ALL. His teacher was really beside herself about this behavior so I did ask if there was a reason he couldn't have an assigned seat with his class in carline. She said she thought that was a good idea (2 weeks ago)...until yesterday when I spoke to her and she told me again how awful he has been in carline and how he was messing around with his sister. I questioned her again about having an assigned seat and then I felt that she was stumbling with her thoughts. She said "Oh, I am not down there every day. He just isn't listening to the teachers that are down there." I asked if the teachers know that Logan has an assigned seat and she said they did, but she said he is choosing not to follow instructions and they can't watch him every second while they are calling out the numbers. However, there is not a single consequence set into place if he doesn't stay in his carline spot. I feel that is a huge problem - you can't set something in place and not have a back-up plan if that plan falls through. This would be a perfect example of when there needs to be a consequence.

He has been super antsy lately and I completely understand the frustration that his teacher has. It hasn't been a cake walk at home either. I can't say I think the tantrums are adorable, or the pulling of his hair is just too cute either...but the fact of the matter is that he is struggling internally as well as externally. It isn't just the ones around him who are suffering from his "obnoxious" behavior. He is struggling to find control of himself and it's a losing battle. How frustrating would that be if you were in his position?!

This disability isn't something you can tell by walking by us at the grocery or the Fall Festival - if you didn't know us and saw us out,  you would probably think "Great parenting skills people - Get your kid under control!" However, there is so much more to this. It truly is an "Invisable Disability."

I pray every single day for Logan - for the doctors that care for him - for the teachers that are around him - and some days even for my sanity! ;) I hope and pray families in similar situations have an amazing support group like we have because I honestly don't think I could do it without all of my family, friends, and readers who are so encouraging, supportive, thoughtful, etc. Thank you!!! Seriously - If you know another mom/dad stuggling with similar issues feel free to share my blog. I find comfort in reading other blogs and knowing that we aren't the only ones coping with this type of lifestyle.

I will post more later...we have family pictures tomorrow and Logan's parent/teacher conference on Friday. :) Have a blessed week!

Autumn


 

Sunday, November 13, 2011

My Strong-Willed Son

I haven't had to write any posts about Logan's naughty little temper tantrums in a LONG while...because we haven't really had one until today. So let me begin by telling you that this little tantrum must have made up for all of the weeks we haven't had any. Seriously. The icing on the cake is that it began at church...

It started out kind of cute...Pastor was asking general questions (the kind you ponder quietly in your head) and Logan took it amongst himself to answer rather loudly. Heck, I was really okay with that until all of his answers revolved around needing to eat breakfast. The child had breakfast...Dunkin Donut's at that. At one point Pastor was making a statement about guilt. Logan shouted "I never feel guilty." Fitting, huh! He got up a couple of times during the sermon and I just knew we were going to be in for a real treat.

Fast forward to Sunday School...Logan opened his snack without asking, he ran around the room, was using some not-so-nice words (but not curse words), wouldn't sit for music, and just had an attitude in general. I called Neil in to try and curve the behavior, but it was too late. As Neil began to talk to him he started in. Neil carried him out into the hallway where he then proceeded to scream a blood curdling scream. We decided after 10 mins of this craziness (I can't think of a better word, but that doesn't even describe it) that we would take him home. We had to carry him all the way through our church kicking, screaming, hitting, you name it. Complete and utter embarrassment! :(

Our ride home was a LONG one (the 15 min car ride seemed more like an hour). He sounded like a broken record: "Daddy, I want to go back! I want Grandma! I will be good, I will! I don't wanna take a nap. I'm sorry! You don't love me!" One statement was even kind of sad and comical all at once "You wish I was in heaven!" If you had heard him screaming you would honestly think that we beat him....don't worry, we don't. However, his consequence was going straight to his room and taking a nap. He obviously needed his nap.

The funny thing though is that he went to bed at a normal hour last night and that he slept fairly well. He was up at 6, however, that is why we decided to go to early service. After his nap...he was an angel. He has been great ever since. He helped his daddy and I cook dinner, picked up his toys, and has been super cuddly. So either he really needed that nap OR he does feel guilt (even though he told Pastor he doesn't...lol).

I do remember that I prayed for patience...and I think that may have backfired! Haha! I will have to pray for something other than patience so that I don't have to practice it as often! :D

Wednesday, August 10, 2011

P.T. Update 8/9/11

I was hoping that Logans PT status would be at about the same as we were last week...because honestly...I don't see the changes that are happening right away because I spend every waking moment with him. Occasionally I will think..."man, he used to be able to do this." or "I thought last time that he did the treadmill he lasted longer." but as far as really *noticing* changes weekly it is so subtle to me that unless it is pointed out, I cannot really tell. I hope and pray that doesn't make me sound like a bad mother...I love this little boy more than anything (except the girls...I really love all my babies just as much as eachother!). Anyhow - what I am trying to get at is that I think/hope/pray all week that "next week" there will be a positive change. You can only go downhill so long before things start to improve...right?!?!

This week Logan's therapist noted that his scapulas are beginning to "wing" (this means that his shoulder blades are protruding from his back because the muscles are not doing their job of holding them in place), his right scapula is worse than his left, his stamina on the treadmill was significantly lower (which I kind of expected because he is just so exhausted), his core muscles are weakening, and the tremor was much worse this week than it was last week. The P.T. was extremely glad we were able to get into the neurologist so fast (this Friday)...she is actually going to type up a letter for me to give to the doctor specifically so that I won't forget anything. She is also faxing all of the weekly reports that she does...but she is very concerned with making sure the doctor does a full in depth evaluation. This makes me feel a little better...

Logan's behavior has been rotten for over a month now. I hate "reporting" that...but it is the truth. The P.T. and I think it is a combination of feeling so crappy, not getting a full nights sleep, and just experiencing all of the changes so fast and he doesn't understand what is going on. It breaks my heart, but at the same time I am so stressed out that the tantrums only add to the stress. I can't even imagine what he is going through. I wish that I could take it away and he could just relax. He can't sit down and have a glass of wine and a bubble bath and forget his troubles (for the time being) like I can. :(

I have been trying to remain strict with the discipline bc he is so smart that if I budge even a little, he will catch on and take full advantage. He did lose his t.v. (the documentaries that he watches every single night) a few nights ago bc he refused to get in his bed. I had to be the bad guy and turn it off...but you know what?! That next night he went to bed without hassle.

If you pray -- please pray that we are doing the right thing -- making the right choices in the doctors we choose to take care of our Logan. Also pray for the doctors patience & intelligence -- this obviously isn't an easy or typical case. Pray for Neil and I that we maintain our patience with the children and the doctor's. Also for our girls -- Emily and Hailey -- to know our love for them is infinite. I am so afraid that they might think Logan has become more of a priority. Each child is very special to Neil and I. Most of all -- Pray for Logan's body -- that it may receive complete healing.

Thank you all so much -- and I will keep updating as I can!

Autumn

Wednesday, May 18, 2011

A Challenging Week...

This past week has been extremely challenging... I think this may be one of the worst weeks yet to date. I am unsure if this is due to the weather and the outdoor allergens, something that I am not realizing in his diet, or just a plain and simple bad week....we all have those, right?!

We have experienced a lot of tantrums, fussiness, irritability, more hitting/kicking, etc. His routine has most definitely been off. His sleeping has been ALL OVER THE PLACE...most days he has been up by 6 a.m., some days he has taken a nap, he doesn't actually fall asleep until 10 or 11, and he is up and down ALL NIGHT.

He has been really hungry for lunch, not hungry at dinner, and then starving at bedtime. We haven't introduced anything new in his diet...but there is always a chance that there is some type of corn that I am not recognizing. It seems like just when I think that I have gotten really good at reading labels, I get home only to realize I have missed something! :/

The most important thing (to me) is that no matter what kind of day or week we are having, I will still love him just as much as I did the day or week before!

Please - keep Baby Keegan over at http://www.karingforkeegan.blogspot.com/ in your prayers. He did have the spinal surgery to remove the mass, but they are almost certain that what they found is recurring medulloblastoma (the type of cancer he had previously). This has been weighing heavily on our hearts this week.

Hope you have a great week! I will leave you with a few pictures we did this past week. :)

Isn't his smile contagious?! <3


My handsome little man! :)


Praying for Baby Keegan...