The dose she initially put him on was 5 mg. The first night was just insane because he was so wired and couldn't fall asleep. He was bouncing around, getting out of bed, hungry, etc. Over the next week we didn't really see any difference at all...except he was a little more excitable and anxious.We checked back in with Dr. B after our week long trial and she felt the dose should be bumped up to 10 mg. In my head I only saw this magnifying the excitability, impulsivity, etc. My mommy instincts were a little weary about bumping up the dose.
Seriously - I am not even kidding - The next morning after going up to the 10mg dose he woke up with a smile on his face! Usually he wakes up groggy, kind of grouchy if he doesn't get what he wants right away, and out of sorts. I was thinking there was no way the medication could work that fast. The day went perfectly - we had NO HITTING, KICKING, BITING, PINCHING, SCRATCHING, SCREAMING, etc. Then he went to bed without any craziness. He gave hugs and kisses, said his prayer, and went to sleep! He never even got up once.
Today is day six on this dose and we have had zero hitting, kicking, biting, pinching, scratching, screaming, etc for six days. He has had a few moments (when he has tried interupting my conversations and needs my attention right.this.second or when the girls are just testing his new found patience) but for the most part he has been pleasant... redirectable... more cuddly... and just happier. He has stopped and let me explain the reasons for the rules we have in place.
Dr. B did warn us not to get too excited. She reminded us that his brain chemicals are changing constantly as he continues to grow. We have already witnessed that meds that work long-term for most children will stop working in a matter of a month or so with him. I am going to remain optimistic. If nothing else comes from this I will take away the days that we have enjoyed together as a family - The conversations we have been having - The sweet smile that has been on his face for almost a WEEK now!
We have been praying a long time now for help and healing for him. We continue to pray that this is an answer to our prayers. That this is a step in the right direction. In my heart I feel that we might just be moving in the right direction. Please, please let it be so.
Here are a few pictures and a video from this past week:
Thank you for catching up and praying for our sweet boy!!!